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ASDPolicy Report (Excerpt)

Release Date: March 26th

This report examines how early children with autism enter the developmental evaluation system across CDC ADDM surveillance sites, highlighting differences in evaluation by age 3 and timing of diagnosis to inform policy and system improvement.



Mapping Autism Policy Priorities in Early 26


Release Date: March 26th

The Autism Policy Institute is an independent, nonpartisan initiative focused on advancing the understanding of autism through a policy and systems lens.

Its work examines how health, education, and social systems interact in shaping outcomes for individuals on the autism spectrum, with an emphasis on translating complex data into clear, actionable insights. The Institute is grounded in the view that autism policy cannot be understood through a single sector alone. Questions of diagnosis, service access, education, caregiving, and long-term support are shaped by overlapping institutions, uneven infrastructure, and differing local capacities.

The Institute’s approach integrates quantitative research, cross-sector analysis, and lived experience to better inform decision-making at the local, state, and national levels. Rather than centering a single disciplinary perspective, it draws on insights from neuroscience, psychology, sociology, design, and public policy to contextualize findings within real-world conditions.

Current areas of focus include early evaluation and diagnosis, service access and delivery systems, patterns in public data, and the role of environmental and structural factors in shaping developmental trajectories. The Institute also places particular emphasis on how data is communicated, prioritizing clarity, comparability, and responsible interpretation in public-facing work.

What We Examine

  • Early developmental evaluation and age of identification
  • Access to services across health, education, and community systems
  • Public data gaps, comparability issues, and state or local variation
  • Policy conditions that shape support for families, caregivers, and autistic individuals

How We Work

  • Translate complex findings into accessible, policy-relevant language
  • Connect data to institutional realities rather than isolated headlines
  • Draw from interdisciplinary research and community-informed perspectives
  • Prioritize analytical rigor, clarity, and practical usefulness

The Autism Policy Institute engages an interdisciplinary network of researchers, clinicians, educators, families, caregivers, and individuals with autism. This collaborative model supports a balanced, evidence-driven perspective while remaining attentive to the diversity of experience across the autism community. The aim is not only to describe conditions, but to improve how those conditions are understood by the people responsible for shaping policy and practice.

Its work is intended to serve policymakers, institutional leaders, practitioners, and other decision-makers seeking grounded, analytically rigorous perspectives on autism and related systems.